Think positive, Paralyzed Again!

This weekend Victoria had some issues to deal with. She got another blood clot from her pic line they put in last week. So they had to take it out. Now she has 2 clots to deal with and no real IV access. Also her trach area got really irritated to say the least. The doctor was supposed to change out the first trach and trach ties Thursday but decided to wait until Tuesday. The problem with that was her trach ties were much tooooooooo tight for her little neck. They cut into her neck and was bleeding quit badly. Now the plastic surgeon had to come today and paralyze her and put her back on sedation to put 4 more stitches to told the trach in place because he does not want any trach ties right now because the cuts are so bad. She has to remain paralyzed so the neck can heal. We just got done weening her from Fentynal and now she is back to a strong dose again. I was so upset last night and frustrated. No doctor had come and actually looked at her neck since the surgery. I new something was wrong because she looked as if she was in so much pain. She was not even able to breath right her neck hurt her so badly. I just have to give it to God because otherwise I will go crazy. Thank God Eddie and I ran to get the doctor Saturday night around 10:30 p.m. to look at her neck. We could not stand it any longer. We mentioned numerous times to her nurse Frank on Saturday but he was not concerned and chose not to let the doctor know about her neck. When the doctor saw her neck his eyes almost popped out of his head. He asked why her nurses did not let him know about this earlier. Well because no one was looking after her neck. She is in the ICU and I do not know how this can happen. Now Victoria pays the price. Please keep her in your prayers . O and her white cell count is up again which I think is fighting her infection at the site of her neck. They took another blood culture to make sure nothing else is starting. Her lung x-ray looks hazy too, they took a trach culture to rule out another case a pneumonia or bateria growing. But the docs have not mentioned much about it. You know the holiday and all. Its hard to keep things moving here this weekend. O I wanted to say I am thankful for Lisa the charge nurse. She listened to me cry and yell last night and she made sure that the plastic surgeon came today on a holiday. I really appreciate her helpfulness and respect for my little girl. Thank You! She is the one that took charge and got things addressed. I wish I would have went to her earlier....