A New Day!

I wish that I had a new picture to show you this time but that is not the case.
I just wanted to give an update sense it's been a few days. Things got pretty serious over the last few days for Victoria. Over the weekend Victoria began having fevers again along with coughing and sneezing and increased secretions just like the last time in Philly. I knew something was up and trying to get ready for what was to come. It is so hard watching your child knowing something is wrong and trying to explain to the doctors and nurses but until something really goes wrong we have to wait it out. Sunday night Victoria began desating into the 60s with 02 and her normal sats should run between 75 and 85. Mind you this was with CPAP which is pressure support to her lungs. I have not seen that before so I new something was coming down the pipe. The XRay on Sunday showed possible pneumonia again. The docs began treating her with antibiotics on Monday. But she was not doing well her lungs began to look concerning again. Yesterday they decided it would be the safest to reintubate Victoria. Because Victoria's heart anatomy is different she does not respond well to vent breathing support. With her heart Glenn procedure it is not ideal for a kid to breathe on a vent. So every time she gets intubated she crashes. That is what happened yesterday just like we told the docs. They are getting to know Victoria here in Miami so they did not know what to expect. They intubated her at 2:00 p.m. and around 5:30p.m. the nurses came to get Mom and Dad to tell us come say a possible last good bye to Victoria. They could not stabilize her and were very concerned. We have been through this before and called pastor Joey Perez to pray for another miracle for our little angel. It was a long night but by the Grace of God she is still here critical but stable. God is so awesome! If it weren't for his grace I have no idea where we would be today. Pastor kept telling me "Keep Believing, just Keep Believing" that is what we do everyday. Thank You Pastor Joey for not giving up on us and our little angel. We love you and your family! Currently Victoria is in the Operating Room because she is having a central iv line run through her liver. We do not understand it but that is the only place they can run it. Victoria is getting a drug called dopamine which can only be given via a central line. Last night she did not have one so they had to run the med through a regular iv and she has nasty burns all over her skin from the med. This medicine was needed to stabilize her last night. It was the only way to keep her blood pressure kinda normal and her sats kinda ok. They were as low as 30s. That was pretty scary. We do not know what is next for her. Please keep praying that God will reveal her issues to the docs. They are talking of doing a tracheotomy next week. We will see. Keep the faith and keep believing with us that Victoria will be home soon.