Life outside of the Hospital

So, we all have been trying to adjust to life outside the H. I am not really used to being around normal people just living life. I really can not get used to the traffic and lines in the grocery store things like that. Fort Lauderdale is really busy this time of year with all of the snow birds. Times like this I really wish we still lived in Tampa because its not crowded at all. We can not take Victoria out anywhere right now with the flu season. The doctors found out the day she checked out of the hospital that she has something wrong with her immune system. We went to see her immunologist last week to find out more info about her immune system. V had 12 ccs of blood taken from her and she was such a good little girl. We have to wait 2 weeks for results. I have been giving her Cod Liver Oil because I have found by research that cod liver oil is excellent for boosting immune system and brain development. I will do anything to help V. It really does stink. That is were the G-Tube really comes in handy. She really has been doing really good these days. We have finally started Physical, Occupational, feeding and speech therapy. These therapies will really help her. We also found out that V needs some Hearing Aides ASAP. We are going to one of the best places for that at the U of Miami Jackson in January. Her right hear has significant hearing loss and the left moderate. The hospital that we are going to also does implants but we do not know if she will need them yet. Next week we will also be seeing a new nutritionist about getting her more calories. I would like to keep her diet completely organic. Hopefully I will be able to get her some fruits and veggies via Juicer really soon. O and Grandpa BOB will be here for Chrsitmas too. We are really excited to see him. We wanted Uncle Eddie to come but he can't this year and we are really disappointed about that one. we will keep updates coming take care God Bless....